http://www.rheumatoidarthritisguy.com/2011/07/the-rheumatologist-for-arthritis-patients-good-support-can-be-hard-to-find/ I realized several things.
- 67.4% of respondents said other members of the household are sometimes or never aware of their arthritis.
- 64.4% of respondents said others in the household never or only occasionally take an interest in their daily issues with arthritis. This can take the form of asking questions to learn more or be more aware, reading about what it’s like to have arthritis, or generally making a person’s life easier.
- The majority of respondents (58.4%) said they feel the most pain from arthritis when cleaning and doing household chores.
First off, we are all very different in how much support we want and need. Add to that the fact that this is not a constant but rather a continually changing dynamic, not unlike RA itself, and it really becomes a challenge to figure out!
I think we really need to be sensitive to the dilemma that our support team members face in trying to be there for us. They are not always sure what we need and I know I am very guilty of not being clear on this. I would not want to be the one trying to decide what to offer me in the way of support and assistance. Not an easy place to be since it changes like the weather!
I totally related to the statistic about household chores. I have found doing everyday jobs to be the most difficult set of tasks to manage and still be functioning and productive, which I really want to maintain! The fact is that some days are better than others and I can do more. On those days cleaning closets, changing beds, etc. is doable - other times, no way!